'That's when I struggle' … Exploring challenges faced by care givers of children with tuberculosis in Botswana.

Title'That's when I struggle' … Exploring challenges faced by care givers of children with tuberculosis in Botswana.
Publication TypeJournal Article
Year of Publication2016
AuthorsStillson CH, Okatch H, Frasso R, Mazhani L, David T, Arscott-Mills T, Matlhare M, Steenhoff AP
JournalInt J Tuberc Lung Dis
Date Published2016 Oct
KeywordsAdolescent, Adult, Antitubercular Agents, Botswana, Caregivers, Child, Child, Preschool, Delayed Diagnosis, Evaluation Studies as Topic, Female, Health Services Accessibility, Humans, Infant, Male, Middle Aged, Patient Compliance, Pilot Projects, Program Evaluation, Tuberculosis, World Health Organization, Young Adult

SETTING: Government-funded public health clinics in and around Gaborone, Botswana.

OBJECTIVE: To explore the challenges faced by care givers of children on treatment for tuberculosis (TB) to inform a more child-friendly approach to Botswana's National TB Programme (NTP) strategy.

DESIGN: Qualitative study using 28 in-depth interviews with care givers of children receiving anti-tuberculosis treatment.

RESULTS: Care givers identified five main challenges: long delays in their child's diagnosis, difficulty attending clinic for daily treatment, difficulty administering TB medications, stock-outs of TB medications leading to treatment interruptions, and inadequate TB education. Care givers prioritized these same five areas to improve the overall management of their child's TB.

CONCLUSION: Our findings suggest that despite accessing care through an NTP that adheres to World Health Organization guidelines, care givers for children on treatment in Botswana continue to encounter significant challenges. While each of these represents a potential threat to successful treatment, they can be addressed with relatively small systematic and programmatic adjustments. These results will inform the next version of the Botswana NTP guidelines towards a more child- and care giver-centered approach.

Alternate JournalInt. J. Tuberc. Lung Dis.
PubMed ID27725041