A shared e-decision support portal for pediatric asthma.

TitleA shared e-decision support portal for pediatric asthma.
Publication TypeJournal Article
Year of Publication2014
AuthorsFiks AG, Mayne SL, Karavite DJ, DeBartolo E, Grundmeier RW
JournalJ Ambul Care Manage
Date Published04/2014
KeywordsAdult, Asthma, Child, Child, Preschool, Communication, Decision Making, Decision Support Systems, Clinical, Electronic Health Records, Humans, Patient Participation, Patient Safety, Pennsylvania

We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.

Alternate JournalJ Ambul Care Manage
PubMed ID24594560
PubMed Central IDPMC4189083
Grant List1P30HS021645 / HS / AHRQ HHS / United States
K23 HD059919 / HD / NICHD NIH HHS / United States
K23HD059919 / HD / NICHD NIH HHS / United States