Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.

TitleHome-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.
Publication TypeJournal Article
Year of Publication2022
AuthorsBoyden JY, Hill DL, Laragione G, Wolfe J, Feudtner C
JournalChildren (Basel)
Volume9
Issue8
Date Published2022 Jul 26
ISSN2227-9067
Abstract

Care for U.S. children living with serious illness and their families at home is a complex and patchwork system. Improving home-based care for children and families requires a comprehensive, multilevel approach that accounts for and examines relationships across home environments, communities, and social contexts in which children and families live and receive care. We propose a multilevel conceptual framework, guided by Bronfenbrenner's ecological model, that conceptualizes the complex system of home-based care into five levels. Levels 1 and 2 contain patient and family characteristics. Level 3 contains factors that influence family health, well-being, and experience with care in the home. Level 4 includes the community, including community groups, schools, and providers. Level 5 includes the broader regional system of care that impacts the care of children and families across communities. Finally, care coordination and care disparities transcend levels, impacting care at each level. A multilevel ecological framework of home-based care for children with serious illness and families can be used in future multilevel research to describe and test hypotheses about aspects of this system of care, as well as to inform interventions across levels to improve patient and family outcomes.

DOI10.3390/children9081115
Alternate JournalChildren (Basel)
PubMed ID35892618
PubMed Central IDPMC9330186
Grant ListF32NR019517 / NH / NIH HHS / United States