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|Title||Engagement and experience with cancer-related follow-up care among young adult survivors of childhood cancer after transfer to adult care.|
|Publication Type||Journal Article|
|Year of Publication||2016|
|Authors||Szalda D, Pierce L, Hobbie W, Ginsberg JP, Brumley L, Wasik M, Li Y, Schwartz LA|
|Journal||J Cancer Surviv|
|Date Published||2016 Apr|
PURPOSE: Young adult survivors (YAS) of childhood cancer require annual adult-focused, cancer-related follow-up given their risk for late effects of treatment. This study describes perception of and engagement with adult-focused, cancer-related follow-up care and general health care among YAS formally transferred to adult care from pediatric survivorship care.
METHODS: YAS transferred from pediatric survivorship care in the prior 1-5 years completed measures indicating engagement with cancer-related follow-up care, other health care utilization, content of communication by providers, quality of cancer-related care, and satisfaction with health care in the prior year.
RESULTS: Eighty YAS (M age = 27.7 years, M time since diagnosis = 10.4 years) participated. Just over half of YAS surveyed (n = 44, 55 %) endorsed continuing cancer-related follow-up care since transfer. Those with cancer-related follow-up endorsed seeing subspecialty survivorship providers (n = 16, 44 %) and primary care providers (n = 22, 50 %) or utilizing a shared care model (n = 6, 14 %). About a third of YAS endorsed seeing subspecialists (n = 29, 36 %) or using other support services (n = 22, 27 %). YAS-perceived content of communication varied significantly depending on care model with less cancer-related content being discussed by primary care providers, though perceived quality of cancer-related care and satisfaction with health care was generally favorable.
CONCLUSIONS: YAS report less than optimal engagement in cancer-related follow-up care and communication in their health care encounters.
IMPLICATIONS FOR CANCER SURVIVORS: Young adult survivors should receive anticipatory guidance about expectations for delivery and content of adult-focused cancer-related follow-up care.
|Alternate Journal||J Cancer Surviv|