Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.

TitleEmerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.
Publication TypeJournal Article
Year of Publication2018
AuthorsNelson KE, Feinstein JA, Gerhardt CA, Rosenberg AR, Widger K, Faerber JA, Feudtner C
JournalChildren (Basel)
Volume5
Issue3
Date Published2018 Feb 26
ISSN2227-9067
Abstract

Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This manuscript, written by experienced PPC researchers, describes issues encountered in our own areas of research and the novel methods we have identified to target them. Specifically, we discuss potential approaches to: assessing symptoms among nonverbal children, evaluating medical interventions, identifying and treating problems related to polypharmacy, addressing missing data in longitudinal studies, evaluating longer-term efficacy of PPC interventions, and monitoring for inequities in PPC service delivery.

DOI10.3390/children5030032
Alternate JournalChildren (Basel)
PubMed ID29495384