Changes Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: A Two-Year Cohort Study.

TitleChanges Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: A Two-Year Cohort Study.
Publication TypeJournal Article
Year of Publication2019
AuthorsHill DL, Faerber JA, Li Y, Miller VA, Carroll KW, Morrison W, Hinds PS, Feudtner C
JournalJ Pain Symptom Manage
Date Published2019 Apr 23
ISSN1873-6513
Abstract

BACKGROUND: Parents of seriously ill children hold personal beliefs about what they should do to be good parents. How these beliefs change over time is unknown.

OBJECTIVE: Describe the pattern of Good-Parent Beliefs over time, and determine whether parents' hopeful patterns of thinking, affect, and perceived child's health are associated with changes in beliefs at 12 and 24 months.

METHODS: Our longitudinal sample included 124 parents of 100 children hospitalized with serious illness. We used latent transition models (LTM) to classify parents into groups with similar Good-Parent Beliefs during the baseline and follow-up periods, and modeled the change in good-parent beliefs over time as a function of covariates using generalized linear mixed models.

RESULTS: Two parent belief profiles emerged from the LTM: Loved ("Making sure my child feels loved", n=61 at baseline) and Informed ("Making informed decisions", n=63 at baseline). At 12 months, 21 parents (20.4%) had moved into the Loved group and no parents transitioned to the Informed group. By 24 months, 8 parents transitioned to the Loved group and 4 to the Informed group (13.04%). Transition into the Loved group was associated with parents' baseline degree of hopeful thinking and positive perceptions of child's health at baseline.

CONCLUSION: Some parents change their parenting priorities over time. Hopeful patterns of thinking and perception of child health appear to predict change. Clinicians should regularly reevaluate Good-Parent Beliefs over time to promote priority-congruent dialogue.

DOI10.1016/j.jpainsymman.2019.04.018
Alternate JournalJ Pain Symptom Manage
PubMed ID31026508