Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network.

TitleBuilding a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network.
Publication TypeJournal Article
Year of Publication2022
AuthorsHandler SS, Varghese NP, Rosenzweig EB, Yung D, Krishnan U, Whalen E, Bates A, Avitabile CM, Jackson EO, Hirsch R, Fineman J, Abman SH
Corporate AuthorsPediatric Pulmonary Hypertension Network(PPHNet)
JournalPulm Circ
Volume12
Issue1
Paginatione12031
Date Published2022 Jan
ISSN2045-8932
Abstract

Pediatric pulmonary hypertension (PH) is a severe, life-threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or unfamiliarity with needed components for success. The Pediatric Pulmonary Hypertension Network (PPHNet) includes expert centers in North America specifically dedicated to advancing the field of pediatric PH through research and excellent clinical care. PPHNet member sites were queried for valuable program components and these findings were discussed for consensus. Here we provide a collective overview of key elements of an optimal pediatric PH program: team composition, access to services, and commitment to education. It is our intention that this document will assist newer and/or smaller programs identify avenues and resources for growth and provide avenues for collaboration.

DOI10.1002/pul2.12031
Alternate JournalPulm Circ
PubMed ID35506071
PubMed Central IDPMC9052968