Data Resources at CPCE

The Center for Pediatric Clinical Effectiveness (CPCE) gathers and manages pediatric health information as complex data resources that can be accessed or utilized by our researchers to answer clinical effectiveness research questions.

The Data Science and Biostatistics Unit

The Data Science and Biostatistics Unit (DSBU), a core facility of CHOP’s Research Institute, administers these resources. DSBU’s staff has expertise in managing and using various data sources, ranging from electronic health records and clinical trial or registry data to administrative, claims, or survey data.

The DSBU serves as a resource for CPCE, PolicyLab, and other CHOP investigators using complex data to address research questions. DSBU provides services in data extraction and management, statistical programming, biostatistics analysis, and analytics data consultation. 

Examples of Databases

Examples of the pediatric healthcare data resources accessible to CPCE investigators include:

  • Pediatric Health Information System (PHIS): The PHIS is a comparative pediatric database that includes clinical and resource utilization data for inpatient, ambulatory surgery, Emergency Department, and observation unit patient encounters for 45 children's hospitals. Read more.
  • Premier Healthcare Database (PHD): PHD is a large, U.S. hospital-based, service-level, all-payer database that contains information on inpatient discharges, primarily from geographically diverse non-profit, non-governmental and community and teaching hospitals and health systems from rural and urban areas. Inpatient admissions include over 119 million visits, representing approximately 25% of annual United States inpatient admissions. The PHD also includes over 875 million outpatient visits to emergency departments, ambulatory surgery centers and alternate sites of care. Read more.
  • Medicaid Analytic eXtract data (MAX): National Medicaid utilization and claim data are derived from the Medicaid Statistical Information System (MSIS) of all 50 states plus the District of Columbia. MAX includes person-level data on eligibility, demographics, managed care enrollment, and Medicaid payment by type of service. It also includes four types of claim data: Inpatient, Long-term Care, other Services, and Prescription Drug. Read more.
  • Cerner Multum Drug Database: A proprietary database of prescription and some nonprescription drug products available in the U.S. drug market, the Cerner Multum Drug Database contains comprehensive drug listings and classifications. Read more.
  • Kids' Inpatient Database (KID): The largest publicly-available, all-inclusive pediatric inpatient care database in the US, KID yields national estimates of hospital inpatient stays for patients less than 21 years of age. KID can be used to identify, track, and analyze national trends in health care utilization, access, charges, quality, and outcomes. Read more.
  • National Emergency Department Sample (NEDS): The Nationwide Emergency Department Sample (NEDS) is part of a family of databases developed for the Healthcare Cost and Utilization Project (HCUP) and the largest all-payer Emergency Department (ED) database in the US. NEDS can be used to create national and regional estimates of ED care. Key features of NEDS include data from children's hospitals with trauma centers. Read more.
  • National Ambulatory Medical Care Survey (NAMCS): NAMCS is a national survey designed to collect data from physicians on the utilization and provision of ambulatory care services in hospital emergency and outpatient departments. Conducted annually, NAMCS findings are based on a national sample of visits to the Emergency Departments and Outpatient Departments of non-federal employed office-based physicians who are primarily engaged in direct patient care. Read more.
  • National Hospital Discharge Survey (NHDS): A national probability survey that provides information on inpatients discharged from non-federal short-stay hospitals in the US, the NHDS was conducted annually from 1965 to 2010. Read more.
  • National Survey of Child and Adolescent Well-Being (NSCAW):  The NSCAW is a nationally representative, longitudinal survey of children and families that have been the subjects of investigation by Child Protective Services. Available data include first-hand reports from children, parents, and other caregivers, as well as reports from caseworkers, teachers, and data from administrative records. This database can be used to relate child and family well-being outcomes to experience with the child welfare system and to family characteristics, community environment, and other factors. Read more.
  • IBM MarketScan: IBM® MarketScan® Research Databases provide one of the longest-running and largest collections of proprietary de-identified claims data for privately and publicly insured people in the US. Insights from this integrated, patient-level data can help demonstrate the clinical and commercial value of treatments. Read more.